Wednesday, July 2, 2014

Eight Months Later

September 2012: Moving On

Celiac disease awareness walk
Autumn had officially arrived in Iowa. The leaves were changing colors and all things pumpkin and apple scented were hot buys. I was still feeling great! I had stopped the visceral massage therapy due to the therapist telling me that my bowel troubles were because of "thoughts that I needed to let go of". Needless to say, I never saw her again. Exciting events were happening in my family: my brother proposed to his longtime girlfriend! We were all thrilled to have a new member of the family.
 The one year anniversary of my gall bladder surgery passed on September 23. It was funny to think of living 365 days without one of my organs, but I was very thankful about that! Another sign that I was healthy was walking in a 5k! I discovered a celiac disease awareness walk in Kansas City, and my family and I went. It was so much fun! I dreamed of Des Moines having a celiac walk after I was diagnosed, but it took so much effort to plan! *side note: my mom and I co-coordinated a very successful celiac disease awareness walk in October of 2013 in Des Moines!* I was proud of myself for being able to walk 3.2 miles. Maybe I was in better shape than I thought!

October 2012: Stronger

Race for the Cure
October brought my future sister-in-law asking me to be a bridesmaid in their wedding! I had never been in a wedding before so I was very excited. I also had a small experiment going on with my diet. I noticed that my stomach was upset whenever I ate any type of sweet--cookies, cupcakes, cake, pie, etc.--so I cut out most sweets and felt tremendously better.
 After two years of sitting out, I was finally able to participate in Race for the Cure! I decked out in all pink and walked the 3.2 mile course with my mom and sister. It was cold, but we had fun anyways. That night was Reggie's Sleepout, a night where people slept in tents in a football stadium to benefit homeless people. It was like 26 degrees or something horrid like that, so I bundled up in multiple layers. I wouldn't say that I enjoyed the event, but I'm glad I was able to do it once in my life.

November 2012: A Very Thankful Thanksgiving

Thanksgiving
I don't think I had ever been as thankful as I was this year. I was making enormous strides with my health. I started a very simple workout routine consisting of floor strengthening exercises, and I could tell that I was making great progress. I always enjoyed fitness before I got sick and it was a goal of mine to eventually start running, but I had to reach my goal weight first. Even though I was feeling healthy, I wasn't at a healthy weight. Anyways, I was able to do everything that I wanted to do when I was sick. I was working and babysitting, driving everywhere, hanging out with friends, exercising, and actually having a life. At Thanksgiving, I was so thankful for my family, friends, doctors, nurses, medicines, and everything else that got me to this point.

December 2012: Where My Demons Hide

Brother Bear's graduation
I am a Christmas fanatic so I usually enjoy the month of December. Even though I was looking forward to Christmas, there were two big obstacles in this month. The first of which was my brother's college graduation. Of course, I was very proud of my brother for earning his degree but unfortunately, his graduation took place in Iowa City. I had struggled with flashbacks and bad memories about going to Dr. Satan in Iowa City and everything that happened after for almost an entire year. How was I supposed to go back?! I knew that I wasn't going to the hospital; I was going to celebrate my brother graduation. I also knew that being back in that city would wreck havoc inside me. Leading up to graduation weekend, I was felt sick with anxiety. I had been around Iowa City numerous times when my brother was a student at the university so I knew how the city was set up. I listened to the song "Titanium" while driving through the city to help calm my nerves. I was very tense and alert for the whole weekend. I constantly looked over my shoulder and around me. My heart skipped a beat every time I saw an older man. The scariest moment of all came when we were leaving the graduation ceremony. I immediately recognized the hospital parking ramp and the entrance that I used when I went there. It didn't take long before I started shaking, my heart raced rapidly, and I broke out in a cold sweat. I tried to console myself by looking through pictures on my iPod of Cookie Delivery Day and of my doctors and heroes, but it didn't stop the traumatic feelings and emotions from playing through my head. As much as I love spending time with my brother, I couldn't wait to be back in Des Moines.
 The next obstacle hit right after Christmas. I had recently befriended the daughter of a church member. Beth was her name, and she had severe gastroparesis; her stomach literally did not move. She "ate" by feeding tubes and threw up whenever she ate anything. My gastroparesis is not as severe as Beth's, but we were able to bond through our common struggles. Beth was a 24 year old fighter. She was feisty, spoke everything that was on her mind, and didn't care who heard it. Her doctors in Des Moines had given up, but I knew that her attitude would pull her through. She was scheduled to have a gastric pacemaker placed in February. On Christmas Eve, we exchanged gifts and made plans to go out for lunch sometime. On December 27, Beth text me saying that she was in the ER due to dehydration and pain on the left side of her body. She wanted me to come and visit her the next day. The texts that I received from Beth didn't make much sense, but I figured that she was just distracted. I text her in the afternoon on December 28, and I thought it was strange that she didn't instantly reply like she always did. I was at the movie theater, seeing The Hobbit with my mom and sister. When we left the theater, there was a text on my mom's phone from my dad, telling her to call him. My sister and I were talking about the movie when my mom suddenly burst out, "WHAT?!" while talking to my dad. She broke into tears, which she rarely does, so I knew something was very wrong. My first thought was that something had happened to my grandparents. My mom got off the phone with my dad and said, "Oh Sarah, I'm so sorry." My instinct told me that my beloved cat, Oliver, had escaped or died.
The bracelet Beth gave me
and a gastroparesis
awareness bracelet
"Beth died." When my mom first told me this, I was in complete doubt. No, that's not possible. I'm going to text her and ask if she died. Of course, that would make no sense but it shows how doubtful I was. As my mom passed on the minor details from my dad, I felt like a heavy weight was slowly pressing down on me. I would never get a "hey hunny! how you feeling?" text from her. We would never have lunch together. I would never go over to her house and play with her adorable daughters. I would never be able to show her the manicure that I got with her gift certificate she gave me for Christmas. I was unable to move for the rest of the car ride. At home, I stood in the snowy driveway until my mom had to move me inside. I finally broke down sobbing. How did the girl I gave a present to on Christmas Eve be dead four days later? Somehow my brother had found out the news and called me right away. Moving on from this obstacle was very difficult and writing about it has been just as hard as writing about what happened in Iowa City. The year had came in like a lion and seemed to be leaving just as bad. Beth's funeral gave me comfort; our pastor talked about how Beth won the battle. She was no longer suffering every single day like she was on earth. It made me smile to think of Beth marching around Heaven telling everybody what was on her mind. I got the manicure she gave me for Christmas the day before her funeral, and I chose purple nail polish in honor of Beth's favorite color. I still wear the beautiful friendship bracelet she gave me about a month before she died, and I see her mother and daughter regularly at church. Beth's daughter is a spitting image of herself, both in looks and attitude! I always smile when I see her daughter march up the aisle to the front of the church for the kids' sermon, and I know Beth is doing the same thing in Heaven.

January 2013: A New Beginning

New Year's Day is always a day to wipe away the bad from the last year and welcome new thoughts of a great new year. 2012 definitely had its bad and good moments. It was hard to move on from Beth's death, but I found myself feeling physically sick whenever I thought of her and the things we never accomplished. I knew that Beth would not want me to not feel well because of thoughts about her, but I was down in the dumps for a while. A follow up with my pediatric GI doctor, Dr. Di, helped cheer me up. The receptionist greeted me with a cheerful smile, and Nurse J. was happy to see him. He had just returned from a vacation in South America and picked up a pin from Lima, Peru for me! Both Nurse J. and Dr. Di were glad to see that I was still feeling great AND that I had brought homemade candy for them. I was still walking on my NordicTrack after eating, and it was getting really old. I discovered that if I didn't eat meat, I didn't have to NordicTrack. I experimented for a few days and confirmed my hypothesis. I officially went vegetarian! I had always been interested in a vegetarian lifestyle, mainly because I love animals so much, and now I was able to try it. I found that I didn't miss meat at all!
 The first anniversary of my appointment with Dr. Satan came on January 23. I surprised my mom with flowers and drinks from Caribou Coffee as a way to make nice memories on what will forever be a very bad day.

February 2013: Sharing My Story

Ever since I had started feeling better, I had this desire to share my health story with the public. I had no idea how I would do that though. A friend of mine had just started blogging and that gave me an idea: maybe I should blog about my health journey. I didn't know if anyone would even be interested, but I figured it was worth a try. I have absolutely loved blogging, and I'm pleased to say that people are actually interested in my story!



Celebrating!
March 2013: A Lot Can Happen In One Year

March was an exciting month. At the beginning of March, I attended a special day at Iowa State University for students wanting to go into food science or human nutrition majors. It was very interesting, and it made me even more confident about going to ISU and becoming a dietitian.
The middle of March brought spring break. As you might remember from last spring break, I ended up in the hospital. Spring break of 2013 was completely different. I worked over 40 hours at both my daycare job and babysitting Lucy and Collin. I was completely exhausted by the time Friday of spring break came, but it was a good kind of tired. On the first anniversary of me being hospitalized, my mom and I went to the coffee shop at the hospital to celebrate how far I had come in a year.
The end of March finished up a great month with a great event: I hit my goal weight! That meant that I could start jogging again. I had been dreaming (and saving money) about a wild pair of Asics running shoes, and now I could finally get them!

April 2013: You Never Know How Strong You Are....

I bought my dream running shoes on April 1, and started using them the next day. I was going to do the Couch 2 5k program, which I would highly recommend to anyone who wants to get started running. I'll never forget my first one-minute run; it was a scene straight out of Chariots of Fire! I enjoyed running three times a week in my new shoes and workout clothes. Running was the last item to be crossed off my wellness bucket list.
My dream running shoes: Asics Gel
Nossa Tri 8
 I woke up one morning, April 12 to be exact, feeling completely normal. I sat down for breakfast, which I oddly remember was a yogurt and granola parfait, and took three bites. BAM. Instant stomach pain. BAM. Extreme fullness. I tried to stay calm as I assessed the situation. Was the yogurt dairy-free? Yes. Was the granola gluten-free and honey-free? Yes. Was I constipated? No. Had I taken my medicine the night before? Yes. I knew I couldn't stop at just three bites so I forced the rest of my breakfast down. When I say forced, I mean it. I had that after-Thanksgiving-meal-where-you're-so-full-you-can't-move-and-think-you're-going-to-burst feeling. What was going on? I told my mom about this, and we decided to increase my Miralax since constipation could cause problems like this. I tried to not worry, but I had never experienced this feeling before. What could possibly be wrong now?

TO BE CONTINUED.......


"You can go the distance/you can run the mile/you can walk straight through hell with a smile"



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